Ishkama Global Change CIC Lends Support to Urgent Gene Therapy Fundraiser

Ishkama Global Change CIC, a social enterprise supporting people with their mental health with holistic therapies, has lent its support to raise awareness and funds for a critical cause.
On its newly-launched Ishkama Radio channel and via other networks the organisation has thrown its weight into highlighting the plight of 10-month-old baby Hitaishi and her family from Andhra Pradesh, India. Hitaishi, diagnosed with Spinal Muscular Atrophy (SMA) Type 1—the most severe form of the disease—is in dire need of a life-saving gene therapy drug, Zolgensma.

Parents Preetham and Gayathri, who are friends with one of Ishkama’s Chairs, Latha Balne, shared their emotional story in an interview with Ishkama’s radio host Hilda Kalap.
Due to SMA, Hitaishi is unable to swallow food or crawl, and her condition is progressively worsening. Without treatment, SMA Type 1 is always fatal. The gene therapy Zolgensma, which offers hope for Hitaishi, comes at a staggering cost of US$2 million. The family faces a race against time to secure the funds by August 15, the critical deadline for administering the treatment before it’s too late.
Abhnash Bains, CEO and Founder of Ishkama says: “If we all chipped in just a little

we can reach this target. It’s about believing it can happen and doing this together. I don’t believe this world should prioritise money before lives.”
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For further information please contact Hilda Kalap: hildakalap@yahoo.co.uk or tel: +44(0)7983216793
Notes to Editors:
More information about Ishkama Global Change CIC: https://ishkama.co.uk/
How You Can Help baby Hitaishi:
Listen to the radio interview: Gain insights and hear directly from Hitaishi’s parents about their journey and urgent needs by listening to the episode on Ishkama Radio https://podcasters.spotify.com/pod/show/ishkama-podcast/episodes/Urgent-Gene-Therapy-Fundraiser-for-Baby-Hitaishi-e2lfej1/a-abd8poq

Watch the latest videos: Get a quick overview of the situation and the urgent call for help by watching two short videos https://www.youtube.com/watch?v=iePsO42JeEU&t=5s
https://www.youtube.com/watch?v=WPGecf7aB6ghttps://www.youtube.com/watch?v=WPGecf7aB6g

Donate: Support the fundraiser by contributing to the crowdfunder on Impact Guru https://www.impactguru.com/fundraiser/help-hithaishihttps://www.impactguru.com/fundraiser/help-hithaishi

Ishkama Radio is committed to leveraging its platform for impactful causes and insightful discussions – changing the world one conversation at a time.
Catch all episodes of Ishkama Radio https://ishkama.co.uk/radio/.